Filed Under (health care) by Rachel on 06-03-2008
2 dots, not 2 lines

The neurologist from the Big Hospital called with the results from the vampire-style skin biopsy. I have small fiber neuropathy, which is, of course, Rare. So rare, in fact, that the Local Neurologist had said that it wasn’t possible. I’m glad I took the advice of my Good Friend Sue and pursued a neurologist in Boston.

I have the osteo arthritis and now Small Fiber Neuropathy quantifiable diagnoses. The “fuzzy” diagnoses of Chronic Lyme and Fibromyalgia are ones that people can debate. It’s nice to have a diagnosis that isn’t questionable. Invisible pain is hard to explain and justify.

However, now we need to research Small Fiber Neuropathy, and make more doctor’s appointments. How severe is it? What can happen? Is there any option besides treating symptoms? Will it go away when the Lyme is gone?

More questions with more answers. Rare condition? check. This is starting to feel normal. How many rare conditions can one person have? I wonder if there’s a World Record for that!

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