Mar
06
Filed Under (health care) by Rachel on 06-03-2008
2 dots, not 2 lines

The neurologist from the Big Hospital called with the results from the vampire-style skin biopsy. I have small fiber neuropathy, which is, of course, Rare. So rare, in fact, that the Local Neurologist had said that it wasn’t possible. I’m glad I took the advice of my Good Friend Sue and pursued a neurologist in Boston.

I have the osteo arthritis and now Small Fiber Neuropathy quantifiable diagnoses. The “fuzzy” diagnoses of Chronic Lyme and Fibromyalgia are ones that people can debate. It’s nice to have a diagnosis that isn’t questionable. Invisible pain is hard to explain and justify.

However, now we need to research Small Fiber Neuropathy, and make more doctor’s appointments. How severe is it? What can happen? Is there any option besides treating symptoms? Will it go away when the Lyme is gone?

More questions with more answers. Rare condition? check. This is starting to feel normal. How many rare conditions can one person have? I wonder if there’s a World Record for that!

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    • A Gaggle of Girls


      About Me: I'm a Mom living a busy life with 3 girls (11, 9, 6) who have just started school for the first time, Celiac Disease, , Chronic Lyme Disease which acts like Fibromyalgia, job-hunting, 1 cat, 1 puppy in exile, and a lot of books as we stay with family in New England. We eat great, homecooked, allergy safe food due to our food allergies & sensitivities.


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